The 100 Trains Global Walk'n'Roll.
50,000km RTW for charity. By train.

100 Trains. THE global charity event of 2016.

What? A series of charity walks, and rolls (for wheelchair users), along the route of a 50,000km RTW train journey.

Why? To raise vital research funds for ataxia research, and as a vehicle to unite ataxia sufferers, supporters and charities worldwide.

The journey will start on the 23rd of January next year, with a Walk'n'Roll through Hyde Park in London (my 50th birthday - and I can't think of a better way of marking the occasion). Everyone, resident or visitor, ataxia sufferer or not, is invited to join me for a gentle stroll through the park.

A wee bit of history.

Tim White and myself (left) on the Kyle Line, on Day 1 of the original journey.

I first attempted this journey in 2013. For my own travelling pleasure on that occasion. The original journey, a lifelong dream of mine, was 18 months in the planning.

I was reasonably able-bodied at the start of the journey, in Glasgow, Scotland (although I was already aware that something "wasn't quite right" healthwise).

However, on reaching Novosibirsk in Siberia on the Trans-Siberian Express, after 21,000km had been completed (rail kilometres), I became rather ill and returned home.

21,000km. Not bad going really.

After returning to Scotland, it took a never-ending stream of doctors and neurologists almost 2 years to identify the cause of my illness. And it wasn't good news.

I myself am suffering from a form of ataxia. Late onset Spinocerebellar Ataxia in my case.

Ataxia? Never heard of it? Neither had I. And we're not alone. Around 91% of the UK population have never heard of it either (one of my aims for this journey, is to put a huge dent in that 91% figure!).

So now I will attempt the entire 50,000km journey again. Only this time, the journey will be done in a number of smaller stages (due to the nature of my ataxia), and I'll also be taking part in fundraising walks in the cities visited - raising vital research funds for ataxia research, and to unite ataxia sufferers and supporters worldwide.

The photograph is of me sitting on top of a mountain on Mallorca 3 years ago (yes, they have mountains on Mallorca). Just 3 years!

My days of walking in the mountains are well gone now though. Today, it is all that I can do to put one foot in front of the other.

And this is what is so important to realise/understand: Ataxia can strike down anyone. At any time.

So what is this "ataxia"?

Don't worry if you've never heard of ataxia before. Until quite recently, I'd never heard of it either (just like 91% of the UK population).

Ataxia is a rare genetic condition. It affects communication between the brain and body. The ability to walk is first to go. Then speech/swallowing, sight and hearing. And then the ability to live at all.

There is currently no cure (although Ataxia UK, and similar charities across the globe, are funding the very hard work that is being done to find one).

And worse still, ataxia is a progressive condition. Meaning that affects only gets worse with each passing day.

So while I still can, I will (with your very kind support of course!).

The best description that I've heard is: "Ataxia. It's like Multiple Sclerosis ganged up with Parkinson's, and played a dirty trick on Cerebral Palsy".

So. Not very nice then.

And because ataxia is a lot rarer than it's more well-known big brothers, fundraising events are rarer too. But sadly, ataxia is no more fun to have.

Ataxia UK

Ataxia UK is the national charity for ataxia in the UK. They are working very hard to find a cure for one, or all, ataxias by 2020.

They are very confident that a cure will be found (their 2020 Vision). A wee bit too late for me personally perhaps? But I've met many people in wheelchairs (both adults and children) who are also affected by ataxia, and it breaks my heart to think that future generations will also suffer from a condition that could be totally preventable.

A cure WILL be found. Of that I am sure. Research funds just need to be found first.

So please support the 100 Trains Global Walk'n'Roll in any way that you can. Thank you!

100 Trains. Be part of it.
*Paypal will convert to your currency of choice.

Friends of the 100 Trains Global Walk'n'Roll

 Name and LocationWebsiteFacebook PageTwitter Page
    VIA Rail, CanadaWebsiteFacebookTwitter
    Comfort Hotel BÝrsparken, OsloWebsiteFacebook
    Hi-Tec UKWebsiteFacebookTwitter
    Northcote, LancashireWebsiteFacebookTwitter
    Hotel and Spa Princesa Munia, OviedoWebsiteTwitter
    Hotel Gabbiano Azzurro, Golfo Aranci, SardiniaWebsiteFacebookTwitter
    Absalon Hotel, CopenhagenWebsiteFacebookTwitter
    Travel Massive, WorldwideWebsiteFacebookTwitter
    Best Western Sligo Southern Hotel, SligoWebsiteFacebookTwitter
    First Great Western RailwaysWebsiteFacebookTwitter
    Apple Apartments, BelfastWebsiteFacebookTwitter
    Visit FlŚmWebsiteFacebook
    City Hotel, Derry/LondonderryWebsiteFacebookTwitter
    Translink - Northern Ireland RailwaysWebsiteFacebookTwitter
    Inlandsbanan (Elisabeth Nilsson)WebsiteFacebookTwitter
    Iarnrůd …ireann - Irish RailWebsiteFacebookTwitter
    Inlandsbanan Railway, SwedenWebsiteFacebookTwitter
    The Grand Hotel, FolkestoneWebsiteFacebookTwitter
    Gavan Connolly (GC Photographics)WebsiteTwitter
    Terre Bianche Guesthouse, Alghero, SardiniaWebsiteFacebook
    Cottonwood Boutique Hotel, BournemouthWebsiteFacebookTwitter
    Karma Resorts, UK and WorldwideWebsiteFacebookTwitter
    Sarah Morley, Lichfield (Design For A Day)WebsiteFacebookTwitter
    Aquae Sinis Albergo Diffuso, Cabras, SardiniaWebsiteFacebookTwitter
    Exmoor House Country Hotel, Exmoor Nat. ParkWebsiteFacebookTwitter
    Ffestiniog TravelWebsiteFacebookTwitter
    Delta Hotels, HalifaxWebsiteFacebookTwitter
    Jaime Tung, London (angloyankophile)WebsiteFacebookTwitter
    Lucy Dodsworth, Cheltenham (On The Luce)WebsiteFacebookTwitter
    Heather Cowper, Bristol (Heather On Her Travels)WebsiteFacebookTwitter
    Neil Dinnen (Wanderer Photos)WebsiteFacebookTwitter
    Jo„o Matias, ÷stersund, SwedenWebsite
    Welsh Disabled Golf AssociationWebsiteFacebookTwitter
    Wyndham Clampett, Cricklewood, LondonWebsiteFacebookTwitter
    Stupor Mundi B&B, Palermo, SicilyWebsiteFacebookTwitter
    Virginie Bottollier, GrenobleWebsiteFacebook
    Tom Fakler, Basel (Tom Fakler Photography)WebsiteFacebookTwitter
    Colwall Park Hotel, Worcs.WebsiteFacebookTwitter
    Doug Lansky, Stockholm, SwedenWebsiteTwitter
    The Glenfarg, PerthshireWebsiteFacebookTwitter
    Maryannick Le Cohu, NiceWebsiteFacebook
    Tim White, Could be AnywhereWebsiteTwitter
    MK LimitedWebsiteFacebookTwitter
    Andy Carter (Calling All Stations Blog)WebsiteTwitter
    Penzion Fantazia, PopradWebsite
    Fatima and Zara Ben Mimoun, NÓmesWebsiteFacebook
    Orchard Pond B&B, CambridgeshireWebsiteFacebookTwitter
    Peter S Lewis, Warks. (Steamtube)WebsiteFacebookTwitter
    The Foodaholic, LondonWebsiteFacebookTwitter
    West Coast Railways (Jacobite)WebsiteFacebookTwitter
    Les Gourmets des Ternes, LondonWebsiteFacebookTwitter
    Anne Diamond, Sutton Coldfield
    The Grange Bed & Breakfast, St.Austell, CornwallWebsiteFacebookTwitter
    Imperial Hotel, GalwayWebsiteFacebookTwitter
    Jeff Titelius, Florida, USAWebsiteFacebookTwitter
    Cardiff Marriott HotelWebsiteFacebookTwitter
    Nigel Heath, Southampton (ataxiafightback)Website
    The Crossways, North Wooton, nr. WellsWebsiteFacebookTwitter
    Martina Valcharova, BrnoFacebook
    Hanbury Manor Marriott Hotel & Country ClubWebsiteFacebookTwitter
    Anita Breland, Basel (Anita's Feast)WebsiteFacebookTwitter
    Hallur Lucien Louis H. Leonsson, Copenhagen
    Waterford Marina Hotel, WaterfordWebsiteFacebookTwitter
    Ian Smith, WorcestershireWebsiteFacebookTwitter
    Edward Kendal, Nottingham (RailwayManiacs Blog)WebsiteFacebookTwitter

100 Trains. Be part of it.
*Paypal will convert to your currency of choice.

The 100 Trains Voyage for Ataxia is very generously funded by The UK Hotel Network and The Friends of 100 Trains.
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